As far as I know, I have never used this blog to make any substantive comments or implications regarding members of my family. That changes today, and I may never know if it was a good idea or not.
If the date associated with this is not adequate context, the world is in the midst of a global pandemic of a virus called Covid-19. Or, at least that is what I believe. There are many different viewpoints on this subject. My only son, the father of my only grandchild, as far as I can tell, considers this to be far from a serious health crisis. He has at least one regular outside visitor to his house with no discernible attempt to avoid disease transmission between his visitor and the rest of the household. I consider it a safe presumption that this visitor has a similarly lax approach to disease transmission interventions in other aspects of their activities outside of my son's home.
My wife wants a traditional Easter ham dinner. We have been trying for many days to arrange for either delivery or pickup of the ingredients needed to prepare such a dinner, to no avail.
I feel compelled to interject here that I realize that even now people in other regions, and probably some people in my own region, are literally starving, or nearly so, due to food access issues that are a direct result of this pandemic.
With no safer way to acquire the requisite ham, I tried going to purchase one in-person in a store today, but had too late of a start for the now-shortened business hours and access control procedures of local grocery stores. This gave me some time to think, not that I hadn't been already.
How do I quantify my relative risk of going into a grocery store with nothing more than a makeshift face mask, vs. having Easter dinner, as invited, at my son's house? My son has offered to shop for me, but that makes me responsible for his exposure on my behalf, the exposure of others to him on my behalf, and not much safer myself in the end.
To clarify my personal risk: I have advanced congestive heart failure which is barely managed to a survivable degree under the best of circumstances. A simple cold put me in the hospital two years ago, and the treatment I received put me into temporary acute renal failure. The seasonal flu would almost certainly kill me. This new virus would almost beyond any reasonable doubt, kill me. I also have type 2 diabetes, which I think is also a risk factor, but I'm not sure how.
Ethically speaking, my primary concern isn't even regarding my own survival, but more whether I become another vector for this disease to affect others, or another patient drawing resources which could help others with a better chance of survival, and frankly more value to society after the fact than I could ever have.
So why am I even writing this?
Seriously, I can't remember.
I guess this is just my transitory trail of digital breadcrumbs which for all I know could be my last futile grumblings about life.
I have made my decision. If my wife wants to go to my son's house for Easter dinner, I will go and attempt to refrain from any further complaint. I will do all I can to avoid being in close proximity with anyone, especially my granddaughter, but I won't make an issue of it because I know there are too many factors out of my control. If anyone present at this dinner has the virus, ultimately everyone will. What saddens me most is that my son has medical conditions which make him very nearly as at risk of non-survival as I am.
I hope that youth and health will get my granddaughter through this alive.
I don't need to explain the many layers of meaning to the title of this post, do I?
Friday, April 10, 2020
Friday, April 3, 2020
Which things have I already done for the last time?
This kind of isolate suffering and dread was mine. Now it belongs to everyone.
I feel cheated, unaccountably responsible, and terribly sorry.
There is no way to be careful enough to save myself.
I am doing all I can to not be a part of this thing hurting others, but I can't control anyone but me.
I am so sick of anecdotal happy news about how wonderful people are being while this is happening. None of that wonderful stuff will stop this from happening. There will be very few left when it is over, and I will not be among them, but I didn't have long to go anyway.
I am well past "somedays".
I am well into wondering which things I have already done for the last time.
I feel cheated, unaccountably responsible, and terribly sorry.
There is no way to be careful enough to save myself.
I am doing all I can to not be a part of this thing hurting others, but I can't control anyone but me.
I am so sick of anecdotal happy news about how wonderful people are being while this is happening. None of that wonderful stuff will stop this from happening. There will be very few left when it is over, and I will not be among them, but I didn't have long to go anyway.
I am well past "somedays".
I am well into wondering which things I have already done for the last time.
Monday, February 24, 2020
Another "Re-Purpoused" Email
This started as what was to be a short email note to my youngest daughter, but it went so far off the rails, I am pasting it here, and cutting the email down to it's original intent.
Here we go:
Reading this over, obsessively and too late to fix anything, my favorite typo is "Hope Depot". I would definitely shop at "Hope Depot", and have an irrational urge to photo-fake a storefront and try to make some kind of meme-ish thing out of it. Too lazy to do that, but not too lazy to spend three nights meticulously remastering an extremely obscure David Sylvian track, featuring Robert Fripp (Approaching Silence, 1994), to make it less dominated by white noise, and to make the many layers of other sounds and voices easier to hear, while introducing a minimum of noise-reduction artifacts. The trick in such cases is to spectrally divide the audio into separate files for each carefully-selected frequency band, and to meticulously edit each file before mixing them all back together again. I think I did a good job of it, but I don't know who would be pleased by, or even interested in, the result other than myself. This is the kind of thing I do all of the time. I can't let anybody else's work, if it is of interest to me, stand as-is, as presented. I always have to mess with it and make it some kind of unintended, by the originator, collaboration with me that interests no-one but me. When the pain of sitting in this chair was too much, I couldn't do this, and it nearly killed me. Fortunately I can do this stuff again, because I am not sure how I would live if I could not. I hope there isn't a name for this disorder, other than "obsessive-compulsive disorder' which is way too general, because I want it to be my lonely little corner of the world of madness. It would be wonderful perhaps to live in a world where such meddling as mine is appreciated by others, but I'm fine in my lonely universe of insanity just so long as I can keep working on these pointless projects. This has long since passed from a legitimate email into the sort of thing that can only exist as a blog post, so I may cut-and-paste it into my blog as well...
[Hey, my first ever holy shit what did I write last night self-censored blog, let your imagination fill in the blanks, or not. Really not, please.]
Damn, I need to stop drinking. I need to give that treatment another try so I can reduce my insanity to a more manageable level. Or not. Bring on the Electro-Convulsive Therapy, I have nothing left to lose!
Here we go:
Reading this over, obsessively and too late to fix anything, my favorite typo is "Hope Depot". I would definitely shop at "Hope Depot", and have an irrational urge to photo-fake a storefront and try to make some kind of meme-ish thing out of it. Too lazy to do that, but not too lazy to spend three nights meticulously remastering an extremely obscure David Sylvian track, featuring Robert Fripp (Approaching Silence, 1994), to make it less dominated by white noise, and to make the many layers of other sounds and voices easier to hear, while introducing a minimum of noise-reduction artifacts. The trick in such cases is to spectrally divide the audio into separate files for each carefully-selected frequency band, and to meticulously edit each file before mixing them all back together again. I think I did a good job of it, but I don't know who would be pleased by, or even interested in, the result other than myself. This is the kind of thing I do all of the time. I can't let anybody else's work, if it is of interest to me, stand as-is, as presented. I always have to mess with it and make it some kind of unintended, by the originator, collaboration with me that interests no-one but me. When the pain of sitting in this chair was too much, I couldn't do this, and it nearly killed me. Fortunately I can do this stuff again, because I am not sure how I would live if I could not. I hope there isn't a name for this disorder, other than "obsessive-compulsive disorder' which is way too general, because I want it to be my lonely little corner of the world of madness. It would be wonderful perhaps to live in a world where such meddling as mine is appreciated by others, but I'm fine in my lonely universe of insanity just so long as I can keep working on these pointless projects. This has long since passed from a legitimate email into the sort of thing that can only exist as a blog post, so I may cut-and-paste it into my blog as well...
[Hey, my first ever holy shit what did I write last night self-censored blog, let your imagination fill in the blanks, or not. Really not, please.]
Damn, I need to stop drinking. I need to give that treatment another try so I can reduce my insanity to a more manageable level. Or not. Bring on the Electro-Convulsive Therapy, I have nothing left to lose!
Saturday, February 15, 2020
Too Real For Facebook
Warning: the following is pretty much a remix of the immediately previous post here. I had originally posted it to Facebook late one night, and woke up a few hours later regretting it. So I hid it on FB, but here it is, for no good reason. Pointless update follows.
[begin deleted FB post]
Depression, if that is what this is, is a confusing thing. I never thought that I would not feel like singing, but that is where I am now. Singing had been the best medicine for most of my life, especially when I discovered how much better it was with an audience, and even better with the support of a live band. The last time I tried I was terrible, and it was humiliating. I keep intending to try again, but I am reaching the point of accepting that I should never try again. I have tried pretty much literally every purported treatment, both conventional and unconventional, except ECT, Ketamine, Psilocybin, and LSD. I have been trying self-acceptance instead of escalating to yet another treatment, but it isn't working. I am so broken inside in so many ways, and I always have been, but now I am also old and tired, physically weak and in pain. All I want to do is to believe that I can sing again, but I can neither sing nor believe.
[end deleted FB post]
And now the pointless update and inevitable reiterations.
Given that the choices are suffering, suicide and treatment, I choose to suffer through the remaining untried treatments, of which the above post omits one highly dubious option: MDMA. There is a legal Ketamine treatment facility in the area, but it is very expensive and very likely not covered by insurance. I don't know of a reliable source for correctly synthesized LSD or MDMA, and outside of clinical trials or eventual legal treatment, finding either seems hazardous and unlikely. Besides, my experience with big-pharma anti-depressants makes me more than a little wary of synthetic psychoactive compounds. Anybody wondering why I'm not talking about CBD or THC, I have already eliminated those from further consideration. CBD is very likely at best a placebo, and THC has no history of efficacy in treatment of depression. Similarly, narcotics are not under consideration, as they are at best distractions from, but certainly not direct treatments for my problems, and pose numerous obvious risks.
So, there is both clinical and anecdotal evidence that Psilocybin is a possible effective treatment, often compared to LSD in both efficacy and theorized mechanism, but has the advantages of not requiring complex synthesis and being readily available. Positive results have been reported from a single substantial dose providing sustainable improvement after the initial experience, and positive results have also been reported from periodic "micro-dosing". I propose that I might try the first, and if later deemed worthwhile, the second method.
If that doesn't work, I think I will skip Ketamine, all known risks and possible benefits considered, which leaves me with ECT (Electroconvulsive Therapy), if it is considered safe enough given my compromised cardiac condition. ECT has a bad popular perception, but a surprisingly good clinical history of safety and efficacy. Nonetheless, I hope Psilocybin will "magically" improve my condition so that I no longer have to consider either ECT or suicide.
Suicide remains extremely unlikely, as I perceive my condition and prognosis at present. Life will end soon enough one way or another without my assistance. Bringing it about abruptly by my own action would selfishly impose considerable temporary distress and inconvenience on my immediate family.
I may have mentioned earlier, but just to make it clear here, after the failure of TMS (Transcranial Magnetic Stimulation, likely just a very elaborate placebo), I resolved to try simple acceptance, and to relieve myself of the debilitating cycle of hope and disappointment. For long stretches of mere numb existence it works, but then there are days and nights when it doesn't. My emotional landscape consists of alternating absence*, sadness, and anger. Of these, I find anger the most intolerable, not just because it is pointless but more because it is unpleasant for those with whom I interact. I have no right to subject anyone to my irrational, unproductive anger. Being merely useless is bad enough. I consider the pursuit of any available reasonable further treatment to be something of a duty, more towards others than myself.
*"absence" as I use it here is a difficult state of being to describe. Time passes, I perform the bare minimum of daily required functions, and I am in many ways not entirely conscious. I may putter about ineffectually on various projects, gleaning no actual progress or results, frequently leaving one effort in scattered pieces and simply taking up another new or previously abandoned effort. Most of my time is actually spent trying to remember what I had been doing, or trying to find the fragments of unfinished work I had previously abandoned.
[begin deleted FB post]
Depression, if that is what this is, is a confusing thing. I never thought that I would not feel like singing, but that is where I am now. Singing had been the best medicine for most of my life, especially when I discovered how much better it was with an audience, and even better with the support of a live band. The last time I tried I was terrible, and it was humiliating. I keep intending to try again, but I am reaching the point of accepting that I should never try again. I have tried pretty much literally every purported treatment, both conventional and unconventional, except ECT, Ketamine, Psilocybin, and LSD. I have been trying self-acceptance instead of escalating to yet another treatment, but it isn't working. I am so broken inside in so many ways, and I always have been, but now I am also old and tired, physically weak and in pain. All I want to do is to believe that I can sing again, but I can neither sing nor believe.
[end deleted FB post]
And now the pointless update and inevitable reiterations.
Given that the choices are suffering, suicide and treatment, I choose to suffer through the remaining untried treatments, of which the above post omits one highly dubious option: MDMA. There is a legal Ketamine treatment facility in the area, but it is very expensive and very likely not covered by insurance. I don't know of a reliable source for correctly synthesized LSD or MDMA, and outside of clinical trials or eventual legal treatment, finding either seems hazardous and unlikely. Besides, my experience with big-pharma anti-depressants makes me more than a little wary of synthetic psychoactive compounds. Anybody wondering why I'm not talking about CBD or THC, I have already eliminated those from further consideration. CBD is very likely at best a placebo, and THC has no history of efficacy in treatment of depression. Similarly, narcotics are not under consideration, as they are at best distractions from, but certainly not direct treatments for my problems, and pose numerous obvious risks.
So, there is both clinical and anecdotal evidence that Psilocybin is a possible effective treatment, often compared to LSD in both efficacy and theorized mechanism, but has the advantages of not requiring complex synthesis and being readily available. Positive results have been reported from a single substantial dose providing sustainable improvement after the initial experience, and positive results have also been reported from periodic "micro-dosing". I propose that I might try the first, and if later deemed worthwhile, the second method.
If that doesn't work, I think I will skip Ketamine, all known risks and possible benefits considered, which leaves me with ECT (Electroconvulsive Therapy), if it is considered safe enough given my compromised cardiac condition. ECT has a bad popular perception, but a surprisingly good clinical history of safety and efficacy. Nonetheless, I hope Psilocybin will "magically" improve my condition so that I no longer have to consider either ECT or suicide.
Suicide remains extremely unlikely, as I perceive my condition and prognosis at present. Life will end soon enough one way or another without my assistance. Bringing it about abruptly by my own action would selfishly impose considerable temporary distress and inconvenience on my immediate family.
I may have mentioned earlier, but just to make it clear here, after the failure of TMS (Transcranial Magnetic Stimulation, likely just a very elaborate placebo), I resolved to try simple acceptance, and to relieve myself of the debilitating cycle of hope and disappointment. For long stretches of mere numb existence it works, but then there are days and nights when it doesn't. My emotional landscape consists of alternating absence*, sadness, and anger. Of these, I find anger the most intolerable, not just because it is pointless but more because it is unpleasant for those with whom I interact. I have no right to subject anyone to my irrational, unproductive anger. Being merely useless is bad enough. I consider the pursuit of any available reasonable further treatment to be something of a duty, more towards others than myself.
*"absence" as I use it here is a difficult state of being to describe. Time passes, I perform the bare minimum of daily required functions, and I am in many ways not entirely conscious. I may putter about ineffectually on various projects, gleaning no actual progress or results, frequently leaving one effort in scattered pieces and simply taking up another new or previously abandoned effort. Most of my time is actually spent trying to remember what I had been doing, or trying to find the fragments of unfinished work I had previously abandoned.
Thursday, January 30, 2020
Listen to "Bad Birthday" by Servotron.
My Birthday present to myself this year is indulging in feeling sorry for myself. For a change.
I learned weeks ago that a Karaoke From Hell performance would, for maybe the only time ever, be happening on my actual Birthday. I have been trying to psych myself up mentally and physically for actually going, but... mostly due to anxiety I have had very little sleep. I already felt a little overshadowed by other very publicly promoted Birthdays near this date, some related directly to Karaoke From Hell, and then I find out that tonight's performance is "JJ's Karaoke From Hell Birthday Party". I don't even know who "JJ" is.
This goes to the heart of the problem. There is a core group of KFH "regulars", but I haven't been regularly a part of that for longer than I was. Back in the early days, I was so omnipresent at their shows I may have even been an annoyance, but it has been much longer since then than my return and my second absence combined.
There has to come a time when I realize that I am no longer meaningfully part of something. That something is a thing with or without me. That is as it should be and it is petty of me to be hurt by it.
Consider also, that I seldom feel the stirring of the urge to sing, even though it had once been, for better or worse, right or wrong, the most important thing to me, especially with an audience, and that when I now do attempt to sing, I am horrified at how much worse I am now than I indulgently remember myself to have once been. Awkward run-on sentence win!
I learned weeks ago that a Karaoke From Hell performance would, for maybe the only time ever, be happening on my actual Birthday. I have been trying to psych myself up mentally and physically for actually going, but... mostly due to anxiety I have had very little sleep. I already felt a little overshadowed by other very publicly promoted Birthdays near this date, some related directly to Karaoke From Hell, and then I find out that tonight's performance is "JJ's Karaoke From Hell Birthday Party". I don't even know who "JJ" is.
This goes to the heart of the problem. There is a core group of KFH "regulars", but I haven't been regularly a part of that for longer than I was. Back in the early days, I was so omnipresent at their shows I may have even been an annoyance, but it has been much longer since then than my return and my second absence combined.
There has to come a time when I realize that I am no longer meaningfully part of something. That something is a thing with or without me. That is as it should be and it is petty of me to be hurt by it.
Consider also, that I seldom feel the stirring of the urge to sing, even though it had once been, for better or worse, right or wrong, the most important thing to me, especially with an audience, and that when I now do attempt to sing, I am horrified at how much worse I am now than I indulgently remember myself to have once been. Awkward run-on sentence win!
Tuesday, January 21, 2020
"Enough" for what?
I sleep as much as possible lately. Two things I have come to like about dreams are that I don't feel physical pain and I don't feel fear. I just awoke from a dream where I learned that my dreams are not an escape from sadness or self-pity.
I just had this dream where every job, every friendship, every project, every relationship from my whole life, everything in which I had ever invested any part of myself, were mashed up, mixed with fictional or allegorical stuff and represented as two jobs I held simultaneously. I had returned from some sort of self-indulgent money-wasting "business trip" and found that both workplaces had been re-imagined, re-shuffled, lots of new people were there, and I couldn't find my desk any more. At each place, someone tried to fire me without firing me, telling me I could "work at home". In both cases I just broke down and admitted that I knew I no longer had anything to contribute and had been faking it for years. I liked to believe that in the early years I had something to contribute, if only because back then everything was as disorganized as I was, and just putting in an effort to prop up the fallacy that things were better was enough. I admitted I had been faking my way though everything for years and that I realized this day of reckoning had to come. Everything had outgrown me. I was still this unreliable fake who sometimes worked really hard at things that didn't really work and sometimes just goofed-off. I had never really been good at anything, and never will be.
I had trouble finding the exit. I would head down towards the basement on staircases that just kept getting shorter, narrower, smaller, until I couldn't move any more. I went back up and kept trying doors to the outside. They all opened to strange places, mixes of the familiar and unfamiliar, and people told me I was in the wrong place.
I didn't fit and I couldn't get out and I was utterly humiliated.
The only thing I am good at is feeling sorry for myself.
This is not a suicide note. I will never commit suicide. It requires a conviction, a sense of purpose and righteousness that I will never have. I know that sounds contradictory and weird. That's me.
But I am sick of half-assed bullshit meant to prevent suicide. What good is a suicide hotline if it talks you off the edge? Will they be there tomorrow and every other day after telling whatever lies it takes to keep the same person from taking the final step? A suicide hotline is there to make the people answering the phone feel good about themselves in the moment, not to save lives, not to change lives that are beyond hope of changing, beyond imagining anything better being possible. Charity is a dark and selfish business.
"You are enough". Enough what, for what? Congratulations, now the word "Enough" looks weird and meaningless.
Again this is not a suicide note. So if anyone reads it, just let me go back to sleep and hopefully dream something more abstract without the psychic agony of this dream I just had.
I just had this dream where every job, every friendship, every project, every relationship from my whole life, everything in which I had ever invested any part of myself, were mashed up, mixed with fictional or allegorical stuff and represented as two jobs I held simultaneously. I had returned from some sort of self-indulgent money-wasting "business trip" and found that both workplaces had been re-imagined, re-shuffled, lots of new people were there, and I couldn't find my desk any more. At each place, someone tried to fire me without firing me, telling me I could "work at home". In both cases I just broke down and admitted that I knew I no longer had anything to contribute and had been faking it for years. I liked to believe that in the early years I had something to contribute, if only because back then everything was as disorganized as I was, and just putting in an effort to prop up the fallacy that things were better was enough. I admitted I had been faking my way though everything for years and that I realized this day of reckoning had to come. Everything had outgrown me. I was still this unreliable fake who sometimes worked really hard at things that didn't really work and sometimes just goofed-off. I had never really been good at anything, and never will be.
I had trouble finding the exit. I would head down towards the basement on staircases that just kept getting shorter, narrower, smaller, until I couldn't move any more. I went back up and kept trying doors to the outside. They all opened to strange places, mixes of the familiar and unfamiliar, and people told me I was in the wrong place.
I didn't fit and I couldn't get out and I was utterly humiliated.
The only thing I am good at is feeling sorry for myself.
This is not a suicide note. I will never commit suicide. It requires a conviction, a sense of purpose and righteousness that I will never have. I know that sounds contradictory and weird. That's me.
But I am sick of half-assed bullshit meant to prevent suicide. What good is a suicide hotline if it talks you off the edge? Will they be there tomorrow and every other day after telling whatever lies it takes to keep the same person from taking the final step? A suicide hotline is there to make the people answering the phone feel good about themselves in the moment, not to save lives, not to change lives that are beyond hope of changing, beyond imagining anything better being possible. Charity is a dark and selfish business.
"You are enough". Enough what, for what? Congratulations, now the word "Enough" looks weird and meaningless.
Again this is not a suicide note. So if anyone reads it, just let me go back to sleep and hopefully dream something more abstract without the psychic agony of this dream I just had.
Friday, January 3, 2020
No Lunaria Calendar for 2020
A minor "boo hoo" for me. There is no Lunaria calendar for 2020. Despite being handed off to various publishers and designers over the years, it was always beautiful and had lots of interesting lunar lore, and I liked the way it had a page for each lunar cycle rather than each month. Fortunately, my other favorite calendar, the glow-in-the-dark LUNAR calendar which has been put out by Universe Press for over a decade, is still being made. It is a traditional page-a-month calendar, but does show the lunar phase for each day. I'm no astrologer, but I've always been fascinated by Earth's moon.
I first wrote this as a Facebook post, but then thought it was too trivial and self-involved, so here it is, safely tucked away in my blog that doesn't get in anybody's face.
Usually my blog bog is full of grim grime and hyperbolic self pity. I don't often bother with that any more because it doesn't change and it doesn't help to keep writing the same gloomy shit over and over again. Rest assured, I am thoroughly miserable, so the world must be functioning normally.
I first wrote this as a Facebook post, but then thought it was too trivial and self-involved, so here it is, safely tucked away in my blog that doesn't get in anybody's face.
Usually my blog bog is full of grim grime and hyperbolic self pity. I don't often bother with that any more because it doesn't change and it doesn't help to keep writing the same gloomy shit over and over again. Rest assured, I am thoroughly miserable, so the world must be functioning normally.
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